baratron: (cn tower)
Home from travelling. Actually, I got in somewhere around 1 pm yesterday and proceeded to pass out for many hours. Woke up at 1 am and (much to my surprise) have been awake ever since. Husband has been snuggled. Boyfriend has been talked to on Skype. He looks very sad, poor thing, but it remains against the laws of physics for me to be in two places at once. Hoping we can have him visit in late June/early July for my birthday.

Super weirdly, I have been physically energetic enough to have emptied the laundry rack, folded the dry laundry, sorted all of the dirty laundry in my suitcase, put on a load of laundry, emptied the clean stuff out of the dishwasher and refilled it. I hope that I will not pay for this tomorrow, though I have A Theory. A theory which involves, of all things, vegan bacon and my ability to get it.

(Gods, I knew that Yves Veggie Bacon wasn't very fatty, but I didn't realise that 3 rashers had only 0.5 g of fat between the lot of them, along with 14 g of protein. Short of actually, y'know, BAKING my own tofu, I am unsure where to get tasty textured fake meat products which are low fat and high protein. Nasty-tasting, weird textured but low fat, I can do. Nice-tasting, well-textured and full of fat, I can do).

Continue to be Unimpressed with Aer Lingus. Will relate the full story later when spoons exist.
baratron: (cn tower)
Saturday, April 22, 2017, 10:00 p.m. — Monday, April 24, 2017, 5:00 p.m.

Due to system maintenance during the dates and times listed, there will be a partial shutdown of AirTrain JFK service. There will be no service to/from all airport terminals and no service at the Howard Beach and Lefferts Blvd stations. AirTrain JFK service will continue to operate a normal schedule to/from Jamaica Station and Federal Circle. Free shuttle buses replace service and will be available at the affected AirTrain stations and airport terminals. Please allow extra time when traveling to and from John F. Kennedy International Airport and see a Customer Care Representative for assistance if needed.


Argh! I just LOVE the idea of having to travel around the airport in a shuttle bus instead of a nice, accessible train! *facepalm*
baratron: (boots)
I have many photos of my trip to the US to post, when I get A Round Tuit. They are crappy mobile phone pictures, but I cannot be bothered to carry a real camera with me any more. I am a terrible photographer with the best equipment in the world, and I'm more interested in recording memories than attempting to take good shots.

Currently I am worrying about being stranded in New York tomorrow once Delta drop me off there.

It turns out that Aer Lingus are morons. I've had several "incidents" with them this trip and am never flying with them again, but in the meantime they are supposed to be getting me home to London tomorrow.Read more... )

So tired

Apr. 19th, 2017 03:16 pm
baratron: (sleepy)
Ye gods, I am so tired.

Shifty is in the process of replacing all of the kitchenware and appliances that he "inherited" from various relatives. However, he doesn't ever use his toaster, so it's pretty low priority for him. The toaster doesn't pop up properly, so I usually unplug it and then reach in with a fork to get the toasted item out.

Today I caught myself reaching into the toaster with a fork while it was still plugged in, thought "I don't want to electrocute myself" and flipped the pastry with (now-burned) fingers. Then I did the exact same thing when getting it out to serve!

My brain is just fried with fatigue. I am seriously contemplating going back to bed because I'm woozy as hell. No idea why I should be so tired, beyond the normal chronic fatigue. I'm sleeping well and falling asleep within minutes of getting into bed, which almost never happens at home. Although yesterday I was feeling like a sim whose Social bar was close to zero, so maybe it's that.

Emailed Dawn and [personal profile] hoopycat a few minutes ago to see if they want to come round for dinner tonight. We have a metric buttload of food that needs to be eaten up because Grant and I keep going out. I'll be up for socialising once I've rested some more.
baratron: (endurance)
Well, I am an idiot. On Friday I went into a complete panic because the official invite for the party with Grant's cow-orkers got sent around, and it was very actively Christian. I generally have no problem with Christians who I meet through queer or poly circles, or who are members of the same political party as me, since I know they are likely to share my liberal values. However, given the state of American politics and the people currently running the country who call themselves "Christian" but share none of the values of tolerance and love expressed by Jesus Christ, I have something of a phobia of American Christians.

Grant says that I am being judgemental and jumping to conclusions, but it is a real problem when people who are in favour of love, equality, and social justice use the same name for their religion as people who are in favour of hatred and rich-white-cis-heteros being superior to everyone else. Of course, neither of them are willing to change to a different name, with the argument from liberal Christians being that they need to reclaim the name of Christ from the hatemongers. I can understand their point of view, but it makes it really difficult to know whether a person who calls themselves Christian is the "good" kind of Christian or the "bad" kind.

of course this gets long, it's me after all )
baratron: (poly)
Yesterday was a little surreal. First of all, a friend who I've known for 15+ years outed themselves as non-binary and planning to start a medical transition approximately 5 hours before we were due to meet in person. Of course, I have no problems whatsoever with a person changing their name and pronoun (as I said, sometimes I feel like the only person in the bi/poly community who isn't non-binary or genderqueer*)- but I usually expect to find out a bit sooner than the day we're meeting for the first time in seven months! It helps to practice the new name and pronoun for a bit by myself so I don't accidentally blurt out the wrong one with the person present.

As it was, I blurted out the wrong name within minutes, and didn't even mean to - I was trying to say "Grant", but my stupid noun aphasia (caused by high doses of venlafaxine, which is otherwise a really good medication for me) cut in and substituted the friend's old name. Just great. Fortunately, friend has indeed known me for 15+ years and has been aware of what my mental health is like when inadequately medicated, and could agree that annoying side-effect beats the state I used to be in.

Then the friend (who may out themselves here if they wish) and I went out for dinner with Shifty and two of his cow-orkers. They were all hideously late owing to their charity work being extremely disorganised, and I was very glad I wasn't sitting in the restaurant by myself. The cow-orkers asked how Shifty and I had met, we started talking about Elder Scrolls Online and the UESP Guild, and it turned out that one of the cow-orkers has been using the UESP wiki since Oblivion (2006). And he was basically fanboying at me for running the UESP Guild and knowing the site owner.

Meanwhile, my friend was talking about their wife and girlfriend, and I was talking about Grant and "my husband, Richard". I mentioned things like when the three of us go out for dinner, how they always pick the same thing and then one of them has to switch so they can try more dishes - that they don't just have the same taste in women. While not explicitly at any stage using words like "polyamory" or "open relationship".

The dinner was nice and it was not too stressful, but I was feeling pretty wiped out by the end. I seem to be fighting some sort of throat infection, which is attempting to ruin my holiday and can sod off any time now.


*I am bigender rather than non-binary or genderqueer, so I am female except when I'm not. I have somewhere between a few hours and a few days of raging gender dysphoria per month where my entire body is Wrong, and the (actually bi but scared of women) gay man in the back of my head comes out. And the rest of the time it's just fine and I want to be addressed as "she/her" and recognised as A Female Geek Doing Nerdy Things. The conclusion I've come to is that my social and political gender is female, but my sexual gender is male.
baratron: (baratron)
I am about 50% of the way through fixing my Dreamwidth Circle to include people's DW names instead of their LJ names if I am certain that they have moved over. It's exhausting! And removing the people who are ACTUALLY DEAD or who I have irreversibly lost contact with (i.e. they haven't logged into LJ since 2003) is emotionally draining.

If you are reading this but are not already in my Circle because your name is different here than it was on LJ, please let me know. Also all of my old filters are messed up, I literally cannot remember who used to have access to what, so if you happen to have a bookmarked post which you can't read any more, let me know and I'll filter you back in. I'm a little tempted to simply delete ALL of my old filters and start again, but I have around 25 of the things - they must have been useful for something!

I also need to remind myself how the S2 system works, and port over my old LJ style if it's actually S2. I can't remember whether I ever got around to switching from S1 to S2! I quite like the default Dreamwidth style that I'm using at the moment, apart from all of the titles being in BLOCK CAPITALS. I am the sort of person who even likes to put her own name in lower case, so all of these BLOCK CAPITALS are quite SHOUTY and I don't like my own journal SHOUTING at me.

In related news, I need to set up a custom mood scheme because I don't like any of the defaults. I *like* my rainbow faces over at LJ, okay?! Might have to commission someone who can sprite to create a custom mood scheme for me. That's not actually a bad idea...

Edit: Ye gods, this is depressing. Apparently it's livejournal's 18th birthday. I could cry.
baratron: (rainbow chemistry geek)
In the process of importing my livejournal. Hoping it won't take forever because 2001-most of 2013 is already here. Wondering about some of my communities (the two or three that I really care about) because I haven't been back to lj to "agree" to their TOS and mark my entire journal as Not Suitable For Children yet. Mostly due to lack of time.

In the meantime, if you want to be added to my Fiends List and use a different username here, please comment. I do so like Dreamwidth's separation of "Subscribe" and "Grants Access".

I am currently in Rochester, New York, USA visiting my partner Grant. Here are some pictures from Monday:
Me and Shifty cuddling

And two more! )

BiFest

Mar. 20th, 2017 08:08 am
baratron: (bi_pride)
Apparently there is a BiFest on Saturday 8th April, approximately 10 minutes walk from my house. This is so very close that I really have no excuse not to go. So who else will be there?

The day after, I am flying to the US to see Grant for two weeks, so it will be awesome to see all my bi and/or poly friends beforehand!
baratron: (aibo)
Today I experienced the joy which is seeing a doctor who doesn't know me. Apparently my usual GP is on holiday somewhere warm, lucky woman.

So I was explaining to the doctor that I have had chronic fatigue and pain on and off since I was 13 and I'm now 40, and that I was concerned about the pain in my left knee. The last time I was in this kind of pain was March 2003 when I got diagnosed with hyperventilation occulta. It's a chronic fatigue syndrome type of pain rather than an injury sort of pain.

I explained that I was concerned because I am unable to do very much exercise because of my exercise-induced exhaustion, and now because of this pain I can't even do the small amount of exercise that I usually do. It hurts when I sit, it hurts when I lie down, it hurts when I stand, it hurts when I walk, it hurts when I stretch. Nothing that I know of changes the pain. Since some of my other joints are starting to get achey too, I am concerned.

Trigger warning: unwanted diet advice. )
baratron: (bunches)
I haven't managed to send Christmas cards to friends for the past two years, due to exhaustion. So I have a pretty big collection of them waiting to be sent now. Who wants one?

There are two options for cards: an amazing winter London scene supporting the Princess Alice Hospice (total: 7 cards) and a cute fuzzy brown bear in a jumper supporting the British Heart Foundation (total: 20 cards). My plan is to send the London cards to people outside the UK and the bear cards to people inside the UK, but this may be thwarted by the mismatch in the number of people I know in each location. I meant to add an option to the poll for people to say which card they would prefer if they have a strong preference, but I forgot - feel free to mention this in comments if you want to.

I do not send e-cards because my purpose for sending out cards is to prove that my imaginary internet friends are real, and e-cards don't prove anything.

[Poll #2059472]

All comments are screened so you can leave your address below. Please do it a.s.a.p. so the cards have some chance of getting to you :)

Please be aware that in asking to receive a card from me, you are NOT obliged to send one back. If anyone is able to understand low energy/disorganisation/a total lack of spoons, then I can. I send cards because I like to do it, not because you must reciprocate! Although if you do want to send me something, here's my address.
baratron: (boots)
I am alive. Coping with the hiatus hernia. Perhaps in a one damned thing after another sort of way. Still, the symptoms have all improved dramatically since I started eating much smaller meals and stopping before I feel full.

Now if my chronic fatigue and pain would kindly sod off, I'd be a lot happier. My legs have been useless for weeks now and I need to talk to my doctor about medication. My left knee in particular hurts if I rest, hurts if I walk, hurts if I stretch, hurts if I sit. Frankly, I can't figure out what doesn't aggravate the bloody thing.

It has been a dreadful year all round. Not least of all politically - as Richard pointed out today, when did the language of the far right become the ordinary way to describe things? And that's even without all the normal stresses of being a queer disabled woman that were already present before politics veered horrendously over to Farageland and Trumpsville.

Most of the good things that have happened this year have involved music, travel, or my partners. Sometimes at the same time. I haven't been well enough to travel much, but Grant came here in February, all 3 of us went to Boston in May to see Freezepop, Richard & I went to the Download Festival in June (and got thoroughly rained on), and I went to see Grant at his new home in Rochester, NY in September. We also saw [livejournal.com profile] ext_890197 and [livejournal.com profile] veryfineredwine, for the first time since I went to Boston to pick up wedding rings. I haven't written anything in livejournal about visiting Grant because it was quite honestly the only week in the past six months that I was not completely exhausted and ill. (Also, it was a 12-day trip including travel, so that gives you some idea of the health).

Richard is now in several bands, including one called Amps at Eleven. (There is a heavy metal umlaut on one of the Es, but I can't remember which one). They have actually done gigs recently, which is more than his other two bands are likely to ever accomplish. I sent text messages to everyone who I thought might like a classic rock covers band and be conceivably able to get to Raynes Park on a Tuesday night, but in the end only [livejournal.com profile] pilot_moondog came. Still, it was good to see Shaun.

I need to make a list of all the gigs I have been to this year. It seems like the only time I ever leave the house is for (a) a medical appointment, (b) to buy cake, (c) to see a band. It's crazy how many people who live in London I haven't seen in 3+ years. I miss having a fuller life. Doing something other than sitting up at night playing Elder Scrolls Online.

Don't get me wrong. I love my ESO Guild and my friends from our Teamspeak. But I'd like it to be A thing that I do rather than THE thing that I do. One of several ways that I hang out with friends, rather than the only one.

Who's still on livejournal? Am I going to be forced to start a Facebook account just so that I can still talk to people?

Blargh.

Nov. 9th, 2016 02:49 pm
baratron: (Warning: Sick!)
So I haven't written anything here since July, which is impressively lax even for me. In short, I have been suffering from the worst chronic fatigue since I lived in the flat and eventually got diagnosed with hyperventilation occulta. I am playing Elder Scrolls Online and chatting to people via Skype and my ESO Guild's Teamspeak channel, but barely socialising at all otherwise, even online. It's just too much effort given my state of exhaustion. I've left the house about 10 times in 4 months.

I have also had an ongoing cold/cough/snot disease thing since June when I caught lurgy at the Download Festival. I get ill approximately every two weeks and stay ill for a week. I have had ongoing digestive TMI since a couple of months before June. And I've been throwing up at least once a day for the past, er, few months.

My GP and I were hoping that it was a Helicobacter pylori infection because that is relatively easy to treat, even if the treatment is unpleasant. But that test came back negative. Nor was there anything particularly exciting in my blood test results. So now I'm waiting for a gastroscopy.

Thing is, I am not at all certain whether there is anything wrong with my digestive system. I am permanently snotty, despite antihistamines, nose spray and eye drops, and the vomiting seems to be related to excessive overproduction of snot. I understand why they're starting by investigating the digestive system, because of all the TMI. But I dunno. My suspicion is that, rather than there being something actively wrong, I'm allergic and reacting to something which forms a major part of my daily diet.

I don't know whether I'm more afraid of the gut biopsy coming back positive for coeliac disease, meaning I'll have to radically change my diet; or negative, meaning I don't have to change my diet (yet) but we still don't know what is wrong. I'm inclined towards wanting to know, because I have been having increasingly bad symptoms since March or April, and it's now November, and I am getting worse rather than better. I was supposed to be back at university by now, not living in limbo.

In exciting news, I got a call from the hospital a few hours ago. Apparently they've had a cancellation and wanted to know if I could come in tomorrow. I was extremely enthusiastic, even after they told me the appointment is at 8.25 am. Unfortunately I can't eat for 6 hours before the appointment, which isn't too bad - but nor can I drink for 4 hours beforehand. This would be fine if I wasn't nocturnal, but being thirsty makes me anxious. I am not looking forward to having my anxiety provoked. Nor am I likely to be able to sleep given the time of day of the appointment - I will be too anxious about not waking up on time.

Good thoughts, and comments about how trivially easy and unstressful your gastroscopy experiences were, would be welcomed at this time.
baratron: (sleepy)
So tired. It's been a long week.
  • Wednesday - Stayed up way too late to run a new dungeon on the public test server of Elder Scrolls Online on Wednesday.

  • Thursday - Meeting with ZOS devs to talk about the new dungeons. So much talking. I still haven't written up my notes from the meeting for my Guild, and I hope I can mostly remember what was said.

  • Friday - Went to see Ginger Wildheart and Hey! Hello at a funny little venue called the Brooklyn Bowl. It's a bowling alley (?) inside the big o2 tent (formerly the Millennium Dome) which also has bands. Kinda weird but it was very accessible, since the entire o2 was built post-Disability Discrimination Act. They were playing along with another band called Ryan Hamilton & The Traitors who were so good we wanted to get their CD, but it was sold-out!

  • Saturday - Work for my mother, and a huge row because she was being unreasonable (at least in part due to a headache).

  • Sunday - The joys of a new washing machine! We bought our washer-dryer, fridge-freezer and dishwasher when we moved into this house in June 2004, and they've lasted well. The fridge and dishwasher have never needed any work, but the washing machine needed to be repaired five times, with issues ranging from worn motor brushes to a broken wire in the motor controller to a sheared bolt holding the drum in place. A couple of months ago, it stopped drying clothes, and Richard determined it needed a new condensing unit. This wasn't a huge problem considering it's summer and we can dry clothes overnight on the rack. However, then the drum stopped spinning altogether. Richard checked the brushes and the motor controller, and determined it would need a whole new motor.

    Thing is, although he could fix it, there reaches a point in an appliance's lifetime where it seems like throwing good money after bad. Putting a new condenser and a new motor into a 12 year old washer-dryer that seems to be gaining a new issue every couple of weeks? Yeeaah. Also, the sheets for our new bed are enormous, and heavier than our machine was supposed to be capable of taking.

    We've been very happy with Bosch, most of all the fact that you can order parts to work on the appliances yourself without needing to be a registered dealer (very useful when you have your own in-house engineer), so we just went out and bought another of the same without any shopping around.

    However, I am currently struggling with the fact that this new washer-dryer is trying to be more intelligent than I am. The old one had three knobs on the front: water temperature, drying time, and programme. This new one has one big knob and a load of buttons. It has fewer temperatures available for washing, and far less control over drying time (with the options being 15 minutes blow around, 60 minutes with heat, 120 minutes with heat, or "auto"). I'm kinda annoyed that we won't be able to wash our socks on 50 degrees C any more, and that we won't be able to dry the clothes for 25 minutes before putting them on the rack. At least, not without some effort.

    Then on Sunday night, I had a huge argument with Shifty, which continued into Monday and only got sorted out on Monday night. We're okay now, but it was really difficult - there was a lot of him not understanding nuances of emotional stuff because of his autism, and me not being able to find a way to explain it better because it's "just obvious" to a neurotypical person. (Maybe even to autistic people with a bit more experience in relationships.)

  • Tuesday - Woke up too early with a sore throat. Hoping it's just from crying too much. More work for my mother. Photoshop. Argh.

  • Today - woke up too early again, still have a sore throat, sincerely hoping it is allergies and not an infection. Wrote a rant about Funding for special education. Now have to email Shifty's crush to tell her some things which he doesn't seem capable of conveying, as well as confirming that yes, we really are poly. Argh.

So yeah, it's just been exhausting all round and I am ready for a break. Which I don't think I'm going to get anytime soon.
baratron: (boots)
Today I have been ADULTING like a PRO. I called the Student Loans Company about the threatening letter which they sent me. To be fair, I have an income-contingent student loan, and they received information from the Inland Revenue to say that I was no longer employed, so they wanted to know where I got my income from, on the basis that I might be secretly earning a small fortune and secreting it away somewhere.

I still have to fill in the damned form, but at least they know that I called them and I'm not trying to avoid paying back the loan.

I also called EDF Energy to get moved onto a fixed-rate tariff that will cost £76 per month instead of the variable-rate tariff which costs £100 per month which we have been on because I didn't have the spoons to deal with it before. Now I am drenched in sweat and I don't think it's only because of the weather.

Why is adulting so exhausting? I mean, neurotypical non-depressed people manage it all the time.

Alexa thinks it's because of tuits/spoons. Adulting uses lots, and they have more of them. I think that explains how they're able to do it more easily, but it doesn't explain why it should take so many bleedin' spoons to do pretty straightforward tasks. I mean, it shouldn't be that difficult to either call or go through the website to change your energy tariff, when you're already being a lazy git and staying with the same energy company because you don't have the energy to start looking around for better deals. But apparently it is? (Actually, I did forget you could do it through the website. That would have made it a lot easier.)

I also still have to deal with Student Finance England and my university, but this also requires dealing with my doctor. I need proof that I've been too sick to be studying for the past year as well as proof that I am now recovered enough to go back. It's a bit too much considering I've been revoltingly ill with bronchitis for the past couple of weeks. I have recovered enough to only need double my usual asthma meds, rather than 6-8 times my usual dose plus oral steroids. But I've only been out of the house 5 times since 14th June, and two of those were doctor's appointments.

Blargh blargh blargh. So much ill. So little energy.
baratron: (Buttercup)
UK Government and Parliament Petitions: EU Referendum Rules triggering a 2nd EU Referendum. To be fair, this doesn't have a hope in hell of succeeding. But I had to do something. Apparently, Nigel Farage said "In a 52-48 referendum this would be unfinished business by a long way". Apparently, if it's 51.9:48.1 in the direction he wanted, it doesn't count as unfinished.

Remember, as Rami Ismail @tha_rami wrote on Twitter:
Just in case somebody argued the majority of the UK voted leave: they didn't.

37.5% voted Leave,
34.7% voted Remain.
27.8% did not vote.

In other news regarding that odious individual, Nigel Farage, he said ‘we won it without a bullet being fired’. Given the tragic death of Jo Cox MP last week, that was a terrible thing to say and he needs to be held accountable for this. 38 Degrees: Nigel Farage: Say sorry for that shocking comment regarding bullets.

The Leave campaigners have blatantly lied. The Guardian: There are liars and then there’s Boris Johnson and Michael Gove - by Nick Cohen. So I signed two petitions about this:

Change.org: Petitioning Home Secretary and Member of Parliament for Maidenhead Rt Hon Theresa May MP. Make it a criminal offence to knowingly mislead the public to achieve electoral gain.

38 Degrees: Expand the powers of the Electoral Commission against misinformation.

and also, related to a referendum promise which now looks unlikely to be kept:
38 Degrees: Keep the promise of £350 million for our NHS. I don't actually believe we do pay £350 million a week to the EU, let alone that all of this money will be freed up if we leave (for one thing, the various regions which currently claim EU funding will need to be given that money. Sadly, the Leave vote was strongest in areas most dependent on the EU).

And some things that I feel strongly about:
Change.org: Mandatory teaching of Politics in British High Schools. Because it seems that a lot of people didn't understand what they were voting for or what leaving the EU would mean. There are still a lot of people in this country who seem to believe that we directly elect our Prime Minister!

38 Degrees: Guarantee no change in the status of E.U citizens currently living in the U.K.

Change.org: Petitioning Boris Johnson MP and David Cameron MP. Government to ensure LGBTQ+ rights do not suffer as a result of the referendum.

And I don't care if you think this is a joke. I am very serious. Change.org: Petitioning Mayor of London Sadiq Khan. Declare London independent from the UK and apply to join the EU.

Still living in the hope that if Scotland leaves the UK and (re)joins the EU, that I'll be eligible for a Scottish passport.
baratron: (boris)
I am very stressed, anxious, angry, and upset right now. I literally cannot believe what has happened. I honestly don't know anyone who voted to Leave.

My friends - well yes, they tend to be left-wing, liberal, anti-racist Europeans. Of course they all voted Remain. But even my family voted Remain! My dad's family suddenly remembered that they are immigrants, and that they are in favour of a free market. My 89-year old grandmother who is horribly racist despite having black grandchildren and great-grandchildren - even she voted Remain! Apparently because she doesn't like Boris Johnson and doesn't want him in charge of anything, but that's still a better reason than a lot of people who voted Leave.

According to the front page of the BBC News site, 17,410,742 people, being 51.9% of those who voted, chose to Leave. Meanwhile 16,141,241 people, being 48.1% of those who voted, chose to Remain. That isn't a clear mandate for anything! Even if the figures were reversed, even if Remain had narrowly squeaked through... I would still be saying that the country is divided, that it isn't a clear mandate either way.

What bothers me is this. My mum manages a block of flats for retired people. In order to make changes to services offered, she needs to follow a Code of Practice which states that to make changes to the status quo, all of the following criteria must be met:
1. 66% of the votes received must support the proposal,
2. 51% of the total number of leaseholders must support the proposal, and
3. not more than 25% of the total number of leaseholders are against the proposal.

Leaving the European Union is many, many orders of magnitude more important for the country than any change to services provided by a block of retirement flats, and yet a 3.8% majority is apparently enough to make the change!

I just can't take this in.
baratron: (Warning: Sick!)
I am back from the Download Festival a.k.a. the Downpour Festival a.k.a. Drownload. It rained. A lot.

Nonetheless, we survived four nights of camping, including sharing a tent with my mother, who has literally never camped before due to a general phobia of everything it entails (e.g. spiders, chemical toilets, dirt under her fingernails, not being able to get properly dry, etc.)

However, due to having been rained on for three days, I now have a terrible cold. Yes, I know you can't catch a cold from being cold - but you can catch a cold from having your immune system lowered and being in close proximity of 85,000 other people, some of whom are carriers of viruses. I have pretty much every symptom known to be associated with colds, including a sore throat, high temperature, coughing, sneezing, blocked ears, all-over muscle aches, and puking. I feel like death warmed up.

Of course, this is a temporary situation and I should be better within a week or so. And I'm not trying to make everyone Give Me Attention considering the terrible news from Orlando over the weekend. But I suppose I feel that if there's one thing worse than living in a world where horrible things happen, it's living in a world where horrible things happen and being unwell. Does that make sense?

Download review will follow when spoons exist. I really do want to type it up because I haven't managed to for the past couple of music festivals I've been to, and I can barely remember Sonisphere 2014 now!

Plans

May. 5th, 2016 03:39 pm
baratron: (dino)
I did not get around to booking for BiCon. The closing date for accommodation was just too early considering that I have no idea what my health will be doing in July. If I am not much better than I am now, I will be going splat and having to go to bed in the middle of the afternoon, at unpredictable times, and it seems fairly pointless to pay money to go away in that scenario.

Which means you might be questioning how come I can go to Boston next week, but that will be easier since I will have the husband and the boyfriend, both of whom are entirely competent carers for me. If we're out and about and I feel too wobbly to carry on, I can trust either or both of them to get me back to the place where we're staying and/or get food into me. Neither of them want to go to BiCon (they are both way too introverted), and I don't have anyone else who is familiar enough with my current limitations to act as a carer. (I know people who would be happy to ensure I got fed, but I wouldn't want to ask any of them to give up what they want to do at BiCon unless I was paying them, which is a whole other kettle of fish and... yeah.)

I still need to talk to my university, because I was supposed to be going back when term started on 18th April, and I am clearly nowhere near well enough to go back for at least a few more weeks. It's likely that I'll actually go back next term instead, as long as they aren't going to give me grief about the fact you're only "supposed" to have a maximum of 2 years (6 terms) "off" on breaks of study during a PhD course. I'd love to be back, but it would be a waste of everyone's time and my money, since I just about have enough energy to get downstairs on average once a day. The increased thyroxine and vitamin D are helping up to a point, but I am not magically better and dancing around full of the joys of spring.

Today is however a glorious day and I went out to vote for the Mayor of London and London Assembly. No prizes for guessing which party won my first choice, and even my second choice is pretty easy to guess. (Hint: I didn't vote for anyone in favour of leaving the European Union). Politics lately are stressing me out: the London Assembly election today, the referendum on leaving the EU in a few weeks, and the horrible, hateful candidate up for election as President of the USA. Honestly, if it weren't for that nice Mr Trudeau, I'd be hiding under a rock.

Also today I washed my dinosaur. Yay! for clean dinos.
baratron: (flasks)
Went to the doctor yesterday. My TSH level, which was apparently 1.93 uIU/mL in October 2015 is now up to the truly appalling 4.13 uIU/mL. Suddenly my need to go to sleep in the middle of the afternoon makes sense.

TSH is thyroid stimulating hormone so the higher the number, the worse your thyroid is responding. Technically the "normal" range goes all the way up to 4.20, but the therapeutic range for thyroxine supplementation is much lower. I think they try to keep it no higher than 1.5.

So that alone would be a good explanation for exhaustion, but also my vitamin D has gone splat again. It's currently around 67 nmol/L. Since I am on a medication which destroys vitamin D, I take a supplement all the time. But when I was having tachycardia, I decreased the dose. Apparently this was a big mistake.

In unrelated news, I have a new phone and am struggling horribly with the official lj client for Android. What do you people use?

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