baratron: (ankh)
[personal profile] baratron
ARGH. My level of stress is now THROUGH THE ROOF.

I have had a weird sore throat thing going on for over a month. Initial symptoms started on Monday 8th September. Wasn't sure then if I was going down with a virus or simply had a lot of allergies. It got worse and I went to the interview on Thursday 11th September dosed up to the eyeballs. By PolyDay on Saturday 13th September I was basically okay but could not speak without coughing. And it hasn't really improved overly much since then.

My throat doesn't hurt all that much, but I feel as though I have a lump in it a lot of the time. It feels dry and uncomfortable. In addition, every time I take my inhalers, swallow pills, eat, sometimes when I drink, if I speak too much or try to sing: vast quantities of snot appear, making me start retching. I am also prone to minor coughing fits, and sometimes throw up from the combination of coughing and retching.

I went to the doctor two weeks ago (Friday 26th September) and said that I was worried that the weird throat thing might be either a new allergy or a medication side-effect. Although it started as part of a cold and didn't go away, I didn't think I had enough symptoms for it to be bacterial. I figured if it was a bacterial infection I'd be coughing up vile yellow/green snot, and it would hurt more, and my temperature would probably be higher. Unsurprisingly the results of the throat swab were normal - no strep infection, normal quantities of other flora. As I was still needing to gargle with soluble paracetamol (and I didn't think it was sensible to go on doing that for weeks on end), I spoke to another doctor on Monday 6th October, who agreed it sounded like I had some sort of allergy going on and prescribed me another antihistamine that I could take during the day. I only got round to picking up that prescription today.

Because I was feeling so utterly rotten yesterday, I crawled out of bed around 11 am today to take an extra 100 mg of carbamazepine. (I'm supposed to get the dose up to 400 mg, but have been stuck on 200 mg for months now.) I then had great trouble falling back to sleep because my throat was so excessively dried out and sore, and drinking water was simply making me need to get up and go to the toilet. When I eventually got up about 3 pm, I took the refill prescription of carbamazepine along to the pharmacy with the prescription for the antihistamine that I'd collected.

Well. The new antihistamine (loratadine) is one that carbamazepine interacts with. RXlist says that loratadine increases plasma carbamazepine levels. It doesn't say "Do not take loratadine and carbamazepine together", but I'd like to check the extent of the increase in plasma levels to know whether they are safe to combine without a dosage change. Especially as loratadine and terfenadine are mentioned in the drug interactions bit of my patient information leaflet. So I am unimpressed with doctor #2 for failing to check that, especially after I'd said "I'm on carbamazepine" just in case she hadn't read that part of my medical notes.

And my refill of carbamazepine came in a different box with a different patient information leaflet, which I of course read due to this being a drug of great evil - and it says "if you get a persistent sore throat or high temperature or both stop taking the tablets and tell your doctor AT ONCE". I have no clue whether the weird throat thing I've been having "counts" as the type of persistent sore throat, as the description is too damn vague. But I have clearly been having some sort of new allergy thing going on recently. And RXlist says "Patients should be made aware of the early toxic signs and symptoms of a potential hematologic problem, as well as dermatologic, hypersensitivity or hepatic reactions. These symptoms may include, but are not limited to, fever, sore throat, ... anorexia, nausea/vomiting, or jaundice. The patient should be advised that, because these signs and symptoms may signal a serious reaction, that they must report any occurrence immediately to a physician. In addition, the patient should be advised that these signs and symptoms should be reported even if mild".

So now the only thing to do is to wait until I can see my own doctor who I actually TRUST to get things right. The earliest I can see him is Friday, and I will try to make it very clear to the receptionists that it is an emergency and I need to see him. Funnily enough, I now trust neither doctors #1 nor #2. The thing that pisses me off most is that I SPECIFICALLY SAID to doctor #1 that I was worried about it being a medication side-effect.

And I need carbamazepine because it's the only thing stopping me from jumping out of a sixth floor window right now, and I have to go to college as usual tomorrow, and I'm supposed to be going to talk to the Disabilities Office and all I can about is how urgently I need to see a doctor who knows how carbamazepine allergies manifest. Especially as I always knew I had a higher-than-average chance of carbamazepine allergy due to genetics. Fuck fuck FUCK!!

Date: 2008-10-09 04:38 am (UTC)
From: [identity profile] jinian.livejournal.com
Ugh, this all sounds a gigantic mess. I'm sorry to hear it. *hugs*

Date: 2008-10-10 12:26 am (UTC)
From: [identity profile] baratron.livejournal.com
I was very, very upset on Tuesday and then stressed out about this on Wednesday. But I went through the list of possible medications again, this time writing down positives and negatives of each one. Then I checked the list against British sources (e.g. netdoctor.co.uk) to confirm which drugs are available in the UK, and what the brand names here are. Surprisingly, the US and UK brand names were the same for everything! I'm not sure whether this is because antiepileptic drugs have been around for so long, or whether no one could be bothered to change the name... So I have some idea of what I want to ask for (the medicine that is chemically closest to carbamazepine) and see what the doctor says.

It gets me down that I have to be this proactive in my health care. If I had an average doctor rather than an exceptional one, and if I was not able to look up symptoms and medicines myself online, I would probably still be muddling along on something useless for me like Prozac instead of being mostly better. My crappy periods now are mostly blips rather than long-term crises, and it's important that I remember that.

Date: 2008-10-09 10:21 am (UTC)
From: [identity profile] nessbutterfly.livejournal.com
Even scarier than my arthritis meds causing anemia problem. I hope things get sorted - and soon!

Date: 2008-10-09 11:34 am (UTC)
nitoda: sparkly running deer, one of which has exploded into stars (Default)
From: [personal profile] nitoda
Doctors should come with health warnings. I think you should show your doctor this entry (or re-write the history even more clearly so that he is aware that you have been seeking help and not receiving it!) Best of luck - if your doc is not away on holiday or whatever then would it be worth ringing and asking to speak with them about this? They might then be able to find you an earlier appointment?

Date: 2008-10-10 12:19 am (UTC)
From: [identity profile] baratron.livejournal.com
There should be notes on the computer recording the fact that I visited the surgery about my sore throat on Friday 26th Sept and had a telephone consultation on Monday 6th Oct. However, most of the doctors in the surgery seem to be "hunt and peck" typists, so type in as little as possible. I doubt it says that I was specifically concerned about it being a medication side-effect.

The thing that annoys me in all of this is that if I was an average person with the health conditions I have - someone who wasn't scientifically trained and with average internet savvy (a typical MySpace/Facebook/eBay user), I really dread to think how ill I could have ended up on several occasions in history. I hate that I have to be extra clever and know how to double-check all my medicines before I put them in my mouth. (I always read the Professional versions of medical websites rather than the Consumer /Patient versions.)

Date: 2008-10-10 05:42 am (UTC)
nitoda: sparkly running deer, one of which has exploded into stars (Default)
From: [personal profile] nitoda
I know what you mean - living today seems to be horribly complicated and unnecessarily so. I wonder sometimes how people who don't have our privileges (good education, high IQ, internet access) are expected to cope at all! I'd vote for a party that advocated a return to simpler times, I'm sure! Hope you get good advice from your "own" doc soon!

Date: 2008-10-09 12:32 pm (UTC)
From: [identity profile] inquis.livejournal.com
How can you be made to wait until friday for an urgent appointment? That's useless!

Date: 2008-10-10 12:13 am (UTC)
From: [identity profile] baratron.livejournal.com
My doctor only works on Tuesdays and Fridays. He is semi-retired and I'm glad that he still works for a day and a half each week, as I've never met anyone else who is any good at prescribing psychiatric meds. It's also clear that I need to speak to someone who is familiar with psych meds and knows what the typical allergic reactions look like.

It's extremely annoying, but if I'm right about this being an allergy, I'd be in the very early stages of the reaction. It only becomes life-threatening once you have purple blisters in all of your mucous membranes. So an extra day is unlikely to make any difference. I'm more stressed about the way my stupid surgery handles urgent appointments than about my health.

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